Eliza

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Hattie
Eliza
Glenn
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Missouri lake house

We have kicked off our 2009 Angelman Syndrome Foundation fundraising event!  We are raising funds for research and to find a cure.  We want to raise $5,000 by the big event- the ASF Walk-a-thon on May 16th.  Please help us by clicking on the donate button above.

Eliza continues to progress well.  She enjoys giving hugs and kisses.  She likes to sit with us and wants us to hold her hand or rub her feet.  She is bringing things to us when we ask for them.  She is initiating communication by bringing her cup to us when she wants more to drink.  She also learned to swim unassisted last summer.  She loves the freedom that comes from being able to float without us holding onto her.  She is a picky eater now.  She has her own ideas about what she wants to eat and will refuse to eat what we feed her sometimes.  She is very much a typical kid!  She is intregrated into Kindergarten for some activities this year but mostly in a special education environment.

She is taking Depakene, an anti seizure medication, and we have seen good seizure control with it.  She also takes Vitamins B12 and B6, Folic Acid, L-Carnitine and L-Glutamine.

Birthday:  April 22, 2002

In 2005 Eliza was diagnosed with Angelman Syndrome.  To learn more about this abnormality with Chromosome 15, please click one of the links below.

Description of Angelman Syndrome

Angelman Syndrome: Our personal story

Click here for the article that appeared in our local paper about Eliza and Angelman Syndrome.

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Fall 08 school picture

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Eliza's Bed at home

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Eliza's other bed in Missouri

For travel on the go, a Tent-Cot is the way to go.

www.tentcot.com

summer 08
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Novermber 2005

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